Wednesday, December 25, 2019
New Mexico: Not really new and not really Mexico
It's been so long, I don't know if this blog is still ready to rock and roll. If you see this, please check in with me. Either text me or comment or shoot me an email, Thanks, fans.
Thursday, August 23, 2018
An email to the Chief of Police (where Jake worked his last day, August 12 of 2016, before he died on Sunday, two days later)
Dear Chief,
Every
now and then I'm compelled to look for clues as to why Jake killed
himself. Today was one of those days. I've just spent the past 1.5 hours
scouring the Internet for information I might stumble upon to help make
sense of his last days. Always a waste of time; never find anything.
The
phone calls that harassed our household for 18 months after his death
have finally stopped (replaced now by myriad political calls of course).
It seems his creditors have all finally given up -- and are not
interested in starting probate procedures. (When I dare to picture in my
mind his home in Albany, I have to assume the KIA still sits in the
garage and his belongings are scattered or pillaged from the house. Last
I heard, the City of Albany was mowing the lawn from time to time.) His
mail, thanks to the sweet young lady who delivers our mail, is being
marked "Moved; left no forwarding address" and I would assume is being
shredded somewhere.
I still have not been able to look at the thumb drive you graciously sent me last year when I asked you for it. For some reason I think it holds your announcement to the MPD family on August 15, 2016.
I still have not been able to look at the thumb drive you graciously sent me last year when I asked you for it. For some reason I think it holds your announcement to the MPD family on August 15, 2016.
I'm still in touch with Christopher Brozek, but I'm not sure if that friendship can sustain itself much longer.
Today
I called Jake's cell phone for the first time. (It was never found, I'm
told.) It rings for one minute, then goes to "busy." I sent him a text
today, too. And I "locked" our texts to one another so they'd never
disappear. Oh yes, the grieving love to torture themselves.
I
posted a 37-stanza poem on my blog earlier this year (a verse for each
year he managed to stay alive). The version I'm going to attach has only
36 stanzas; I removed one that refers to a love relationship he had for
6 years with a woman you undoubtedly know. I'd rather that not get back
around to her. I've had a few brief conversations/texts with her this
past year and she is very, very kind to me.
I
don't know why I'm writing you. You called and left a message last
week. You were one of only 3 people I know of who remembered the date.
My husband and I cried listening to you, of course. I feel you've done
your job now, Chief. Two anniversaries you've reached out; no need to
keep it on your calendar henceforth. But thanks . . . from the bottom of
my heart.
The blog post is attached.
Jake Skibba 1979-2016
Only
the Memories
Oh,
how tiny you were.
You
couldn't latch on,
refused
to perform
for
gentle neo-natal nurses.
Warm
soy milk.
How
mottled you were.
When
at last I brought you home
your
grandmother wondered
how
I could care for one so small.
Transparent
skin.
How
I'd walk with you, wide-eyed
in
your yellow umbrella stroller.
I
showed you the new bridge and
the
Sugar Bowl cafe coming down.
Dust
and noise.
How
you were mistaken for a girl.
It
was my fault, of course.
I
couldn't bear to cut your hair
after
the spot they shaved grew back.
Blonde
silk.
How
we visited the library
and
borrowed puzzles,
but
all you wanted to do
was
put the pieces in a frying pan.
Wooden
spoon.
How
you had to be coaxed into
eating
breakfast before school.
I'd
make a “happy plate,”
arranging
your food like a picture.
Edible
art.
How
you loved those stories
about
a badger named Frances
(with
her smug disposition)
and
a mischievous child named Hattie.
Giggle
time.
“Hattie
be quiet. Hattie be good”
you'd
pretend to read aloud,
enunciating
the double T's,
and
exhaling with your H's.
No
baby talk.
How
you beamed in first grade,
darting
from your room that day,
exclaiming
“I can read! I can read!
Mom,
I can read!”
Think
light bulb.
How
you loved my sticky notes.
You
put one on the ironing board
that
said “I need a hog.” When discovered,
I
indulged you with a loving hug instead.
Mistakes
don't matter.
How
you loved collecting things.
Erasers
of every shape and color
appeared
at our feet, arranged like careful mosaics,
blocking
doorways, gracing halls.
Fine
art, I said.
How
you never fussed about wearing
glasses
at the ripe old age of eight.
“They
emphasize your intellect,” I said,
and
you never took them off.
Smug
little nerd.
How
you ran to me with a tiny cut
I'd
cover with a band-aid, careful not
to
touch the sticky part until affixed to you.
“Only
moms do it that way,” you said.
When Band-aids
did the job.
How
you found yourself in Catholic school –
new
town, new school, new 8-year olds.
You
sat quietly for morning mass
when
all the others knelt or stood.
The
non-Catholic.
How,
on the last day of fifth grade,
you
taped a note to my bedroom door.
“I
really want to move back home,”
you
begged, “I want to live with Dad.”
Wicked
step-dad.
How
you cooperated with my need
to
see you every weekend then,
traveling
half the way with Dad
and
half the way with me.
Parking
lot exchange.
How
you saved your money all year long
to
light the sky and blow things up
on
the fourth day of July –
an
annual show for friends, for family.
Your
own tradition.
How
you delivered the news on roller blades,
so
swift, so sure – self-satisfied.
Newsprint
photo on page one. It's you,
with
a story to make a mom proud.
Below
the fold.
How
we loved to try to catch the other
with
some crazy made-up story.
Like
the night I told you stop signs
weren't
meant to be obeyed after midnight.
Gotcha.
How
you memorized your favorite lines
from
movies that you loved,
and
delivered them with perfect timing.
Someone
else's words to fill the void between us.
Borrowed
lines.
How
you moved across the stage,
the
class of '97.
I
watched you, in slow motion,
as
you took that turning point with honors.
4.0
gold tassel.
How
you insisted on a private room
in
the freshman dorm that fall,
your
need for solitude no mystery.
And
when we left, you quickly closed the door.
Keep
out.
How,
that first semester, you met the devil
whose
name was
Calculus.
His
vulgar
voice inside your head
played on and on,
“You're
not so smart, this pond is large, young man.”
Not
like high school.
How
you let that devil ruin you.
How
quickly you gave up.
“How's
it feel in that big pond, little fish?”
The
only voice you heard, the only one that mattered.
Big
fish abound.
How
then you turned to music, with
classical
guitar, your major.
And
next you thought “a pastry chef, the culinary arts.”
Or
architectural landscape since you liked to mow the lawn.
Out
of focus.
How
you took a job, short-order
cook.
Who
could know the sway of kitchen staff,
the
drugs, the alcohol,
would
take you on that dangerous ride?
Over-easy
ecstasy.
How
you floundered that next decade.
In
school, out of school, this job, that –
Nothing
ever satisfied
that
drive you had to be the best.
At
something.
How
you pulled yourself together then –
Good
job, a mortgage, your best-friend dog.
You
fenced your yard and
in
the spring your neighbors loved your rhubarb.
A
house, not home.
How
the house you bought was old,
rundown,
and needed everything.
You
thought you'd fix it up,
but
all you did was tear up every room.
Not
a fix-it-yourself kinda' guy.
How
we took a spade along
to
walk your dog on public trails
and
stole the tiny maple trees
still
standing, alone now, in your yard.
Marking
time.
How
you loved all manner of music
and
copied library CDs.
The
perfect illegal hobby for a single guy
with
student loans, car payments, and a long commute.
Always
broke.
How
the more you regretted buying
your
humble property,
the
higher grew the weeds
and
your tools, left out, now rusted.
Who
cares?
How
the lack of garbage pick-up
meant
you hauled your own detritus, paid a fee.
So
your car gave up the garage
to
bags and bags of that which wouldn't burn.
Trailer
trash.
How
you had less, and less, and less to say --
to
me . . . or anyone.
The
times we spent together, all the empty space
you'd
try to fill by showing me your best-loved tv shows.
Stilted
repartee.
How
you kept your problems from me.
Addictions,
loneliness, regrets.
I
thought it meant you felt more settled,
and
perhaps with age, you'd mellowed.
Little
did I know.
How
you took the future into your own hands,
choosing
to leave us all bewildered.
With
an email note apologizing
for
any inconvenience you may have caused.
Braided,
yellow rope.
Tuesday, February 20, 2018
He takes his life . . . and most of mine.
Jake Skibba 1979-2016
Only
the Memories
Oh,
how tiny you were.
You
couldn't latch on,
refused
to perform
for
gentle neo-natal nurses.
Warm
soy milk.
How
mottled you were.
When
at last I brought you home
your
grandmother wondered
how
I could care for one so small.
Transparent
skin.
How
I'd walk with you, wide-eyed
in
your yellow umbrella stroller.
I
showed you the new bridge and
the
Sugar Bowl cafe coming down.
Dust
and noise.
How
you were mistaken for a girl.
It
was my fault, of course.
I
couldn't bear to cut your hair
after
the spot they shaved grew back.
Blonde
silk.
How
we visited the library
and
borrowed puzzles,
but
all you wanted to do
was
put the pieces in a frying pan.
Wooden
spoon.
How
you had to be coaxed into
eating
breakfast before school.
I'd
make a “happy plate,”
arranging
your food like a picture.
Edible
art.
How
you loved those stories
about
a badger named Frances
(with
her smug disposition)
and
a mischievous child named Hattie.
Giggle
time.
“Hattie
be quiet. Hattie be good”
you'd
pretend to read aloud,
enunciating
the double T's,
and
exhaling with your H's.
No
baby talk.
How
you beamed in first grade,
darting
from your room that day,
exclaiming
“I can read! I can read!
Mom,
I can read!”
Think
light bulb.
How
you loved my sticky notes.
You
put one on the ironing board
that
said “I need a hog.” When discovered,
I
indulged you with a loving hug instead.
Mistakes
don't matter.
How
you loved collecting things.
Erasers
of every shape and color
appeared
at our feet, arranged like careful mosaics,
blocking
doorways, gracing halls.
Fine
art, I said.
How
you never fussed about wearing
glasses
at the ripe old age of eight.
“They
emphasize your intellect,” I said,
and
you never took them off.
Smug
little nerd.
How
you ran to me with a tiny cut
I'd
cover with a band-aid, careful not
to
touch the sticky part until affixed to you.
“Only
moms do it that way,” you said.
When Band-aids
did the job.
How
you found yourself in Catholic school –
new
town, new school, new 8-year olds.
You
sat quietly for morning mass
when
all the others knelt or stood.
The
non-Catholic.
How,
on the last day of fifth grade,
you
taped a note to my bedroom door.
“I
really want to move back home,”
you
begged, “I want to live with Dad.”
Wicked
step-dad.
How
you cooperated with my need
to
see you every weekend then,
traveling
half the way with Dad
and
half the way with me.
Parking
lot exchange.
How
you saved your money all year long
to
light the sky and blow things up
on
the fourth day of July –
an
annual show for friends, for family.
Your
own tradition.
How
you delivered the news on roller blades,
so
swift, so sure – self-satisfied.
Newsprint
photo on page one. It's you,
with
a story to make a mom proud.
Below
the fold.
How
we loved to try to catch the other
with
some crazy made-up story.
Like
the night I told you stop signs
weren't
meant to be obeyed after midnight.
Gotcha.
How
you memorized your favorite lines
from
movies that you loved,
and
delivered them with perfect timing.
Someone
else's words to fill the void between us.
Borrowed
lines.
How
you moved across the stage,
the
class of '97.
I
watched you, in slow motion,
as
you took that turning point with honors.
4.0
gold tassel.
How
you insisted on a private room
in
the freshman dorm that fall,
your
need for solitude no mystery.
And
when we left, you quickly closed the door.
Keep
out.
How,
that first semester, you met the devil
whose
name was
Calculus.
His
vulgar
voice inside your head
played on and on,
“You're
not so smart, this pond is large, young man.”
Not
like high school.
How
you let that devil ruin you.
How
quickly you gave up.
“How's
it feel in that big pond, little fish?”
The
only voice you heard, the only one that mattered.
Big
fish abound.
How
then you turned to music, with
classical
guitar, your major.
And
next you thought “a pastry chef, the culinary arts.”
Or
architectural landscape since you liked to mow the lawn.
Out
of focus.
How
you took a job, short-order
cook.
Who
could know the sway of kitchen staff,
the
drugs, the alcohol,
would
take you on that dangerous ride?
Over-easy
ecstasy.
How
you floundered that next decade.
In
school, out of school, this job, that –
Nothing
ever satisfied
that
drive you had to be the best.
At
something.
How
you lived with a woman who cheated
on
you – six long tumultuous years.
Then
three more years would come and go
before
I learned that secret and the pain it put you through.
Afraid
to try again.
How
you pulled yourself together then –
Good
job, a mortgage, your best-friend dog.
You
fenced your yard and
in
the spring your neighbors loved your rhubarb.
A
house not home.
How
the house you bought was old,
rundown,
and needed everything.
You
thought you'd fix it up,
but
all you did was tear up every room.
Not
a fix-it-yourself kinda' guy.
How
we took a spade along
to
walk your dog on public trails
and
stole the tiny maple trees
still
standing, alone now, in your yard.
Marking
time.
How
you loved all manner of music
and
copied library CDs.
The
perfect illegal hobby for a single guy
with
student loans, car payments, and a long commute.
Always
broke.
How
the more you regretted buying
your
humble property,
the
higher grew the weeds
and
your tools, left out, now rusted.
Who
cares?
How
the lack of garbage pick-up
meant
you hauled your own detritus, paid a fee.
So
your car gave up the garage
to
bags and bags of that which wouldn't burn.
Trailer
trash.
How
you had less, and less, and less to say --
to
me . . . or anyone.
The
times we spent together, all the empty space
you'd
try to fill by showing me your best-loved tv shows.
Stilted
repartee.
How
you kept your problems from me.
Addictions,
loneliness, regrets.
I
thought it meant you felt more settled,
and
perhaps with age, you'd mellowed.
Little
did I know.
How
you took the future into your own hands,
choosing
to leave us all bewildered.
With
an email note apologizing
for
any inconvenience you may have caused.
Braided,
yellow rope.
Tuesday, November 14, 2017
5 Years ago . . .
A burden that hovered over me the past four years ended a few months back. My new freedom was a joyful event, but it has taken me many weeks to find myself (again).
Today I find myself in a small city in Virginia, where Greg and I are staying at a lovely Hampton Inn. This was to be a work trip for Greg, but when I expressed a desire to tag along, we added stops in Philly to visit his daughter and a two-day romp around D.C. before arriving at Greg's work destination yesterday.
Being on my own, away from home, brings back memories of the way life felt to me six years ago, before cancer took over the second time.
I stumbled across my blog this morning, quite by accident, after abandoning it in 2012. I'm considering taking it up again. It's been visited an average of 23 times a week during my absense. My software claims those 23 visits are after the spam was scooped into a folder of its own.That amazes me. I wonder what search words brought people here.
And what would bring people back if I started publishing again?
Today I find myself in a small city in Virginia, where Greg and I are staying at a lovely Hampton Inn. This was to be a work trip for Greg, but when I expressed a desire to tag along, we added stops in Philly to visit his daughter and a two-day romp around D.C. before arriving at Greg's work destination yesterday.
Being on my own, away from home, brings back memories of the way life felt to me six years ago, before cancer took over the second time.
I stumbled across my blog this morning, quite by accident, after abandoning it in 2012. I'm considering taking it up again. It's been visited an average of 23 times a week during my absense. My software claims those 23 visits are after the spam was scooped into a folder of its own.That amazes me. I wonder what search words brought people here.
And what would bring people back if I started publishing again?
Tuesday, December 3, 2013
Aquarium stones rock my world
(The following won’t make any sense to you unless you know
this about me: I’ve had breast cancer –
twice. Total of four surgeries to remove tumors and breasts, with extremely
little tissue left in that area.)
“You know what I wish I had? One of those lead vests – the kind
they put on you at the dental office when you’re having x-rays.”
That was me, a few months ago, while shopping with my friend
Lori at our favorite thrift store, the Goodwill Outlet we lovingly call "Bin World."
“What in the world . . . ?!” she says, though not entirely
surprised. After all, both of us like crazy-talk and are, on occasion, really
quite silly.
I ignore her and go right on shopping as if wanting your very own lead vest
were high on everyone’s list.
“Seriously?,” she says, “What would you do with a lead vest?”
I lower my voice* and begin explaining how, in the evening
when I’m tired and want to relax in my recliner, the scars across my chest are
like an over-tired child. “The nerves kick and scream and make a fuss; it’s like
I just woke up from surgery and the pain meds haven’t kicked in.” I tell her it feels like an electrical storm
in my nervous system. “I fold my arms across my chest to keep my nerves from
jumping out of my skin.”
Without pause, she says “Well! have I got a remedy for that!” Her tone
suggests I might have known she could fix something as simple as an electrical
storm in my nervous system. She offers no more, and I don’t ask. That’s just
the way we play the game, Lori and I.
A few days later she is at my door with a goofy grin and a
tissue-topped gift bag.
“Don’t let the tissue paper fool you,” she says as she
offers me the gift – one hand holding the handles, the other supporting the
bottom of the bag.
I take the bag by the handles. It is surprisingly dense.
(By this time, of course, I have completely forgotten our conversation about
the lead vest.)
“It’s a Chest Crusher,” she says excitedly. “It’s Model 1.0,
awaiting evaluation!” Of course I knew, then, it was her invention and handiwork,
knowing how innovative and creative she has always been with a sewing machine.
Indeed. Chest Crusher 1.0, that evening, turned out to be
quite the comfort. (Shown below with its eight pockets of aquarium stones,
separated for even distribution, and its sporty slipcover.) It is the best,
most repeatable, long-lasting hug money couldn’t
buy.
Not only does Chest Crusher 1.0 bring relief in my recliner,
it goes to bed with me as well, offering all-night comfort for messed up
nerves.
'Next day I naturally express sincere gratitude, and just as
naturally, she asks if there are any improvements that might be made to Chest
Crusher Model 2.0.
I tell her 1.0 is the essential bed partner because its
ample length means I can drape it over my back and around the front of me when
side-sleeping. “If I had a slightly shorter version for use in the recliner,” I
tell her, “it would just reach across the scars and not create bulk under my
armpits.”
And, of course, she is happy to indulge me with Model 2.0 –
the ultimate Chest Crusher for daytime and evening relaxation.
I love my Chest Crushers! One lives in the bedroom upstairs.
The other stays on the first floor. What a privilege it is to have thoughtful
friends who enjoy being creative with a sewing machine (and also knitting
needles). You know who you are, all four of you.
Should this story reach others who might be comforted in
this manner, please email Mary.the.booklady@gmail.com.
I’m sure Lori would be tickled to provide DIY instructions for either model.
*I’m pretty sure I didn’t have the good sense to actually
lower my voice, but can only wish I had that kind of tact and presence of mind in public places.
Saturday, June 1, 2013
Half a year later, an update!
Front yard from our bedroom window. You can almost see things grow this time of year. |
Now and then I check the Feedjit gadget showing how many people are still looking at this blog. It amazes me, since my last entry was half a year ago.
The least I can do is give you an update on the cancer thing.
March, April and May will remain in memory as a time that went from darkness to light.
What appeared on a CT scan in March to be a torso dotted with cancer turned out to be cracked and broken ribs -- both front and back -- all on the left side where they zapped me with radiation in 2007 and again in 2011.
During the ensuing week of clinic visits and various added scans, someone (finally) suggested I see the Wound Care Clinic about the open sore (by then 18 months old) in my scar line. This, too, remained as part of the aftermath of second-degree burns from 2011's radiation.
Seven weeks of special potions and dressing improved the open sore -- and by the time I was allowed audience with a plastic surgeon, I knew I wasn't about to let anyone cut me. Good enough is good enough. The plastics guy agreed I wasn't a candidate for a skin graft.
Before I learned about my fragile ribs, I'd been going to the Y five or six times a week. Not only was I trying to regain upper-body strength, I was trying to lose the 15 pounds still hanging around after my last treatment and hoping to improve my energy and level of happiness.
When Oncology diagnosed the fragile ribs, Dr. G. expected I'd be thrilled. Not cancer, after all. Instead, I pouted. I'd been ready to hear I was riddled with cancer, but not ready to hear I'd have to stop my upper-body workouts and attempts to lose the weight. Dr. G. lightheartedly told me not to hug anyone, use any of the muscles attached to my left rib cage, and "certainly, don't fall or have any kind of accident." This wasn't the first time I'd wanted to slap his smiling face.
Eventually I stopped pouting. At the Y, I concentrated only on aerobics on the elliptical trainer. I began counting calories (MyFitnessPal.com really helped). I solved the energy/depression problem as best I could with more drugs. I abandoned my hope of being able to go bra-less and instead began wearing tight binding over my scars 24/7 as a means to achieve comfort around my torso from too many surgeries and not enough skin.
The darkness started to fade about a month ago when I came to a place of finally accepting what is (again).
Coincidentally (?), perennial gardening started around the same time.
I've lost about half the weight I so abhorred.
For the past few days, I haven't had to take what Greg calls my "speed" in order to get through the day.
All's well that ends well. I wish I knew for certain that this is the end of cancer treatment for me. In the meantime, most days it doesn't occur to me that there might be a third time and I find moments of bliss returning.
There's always hope.
Thanks for checking in!
Wednesday, December 19, 2012
"Is your cancer in remission?"
I don't really know what remission means and I'm not about to research it. All I know is that I show up for my surgeon's and oncologist's suggested follow-up visits. (I rather flatly refuse to follow up with Radiation- Oncology. I want them to know how pissed I am. And yes, I know how ridiculous that sounds.)
The surgeon regularly gives me a no-breast exam. The oncologist looks at my blood for whatever possible signs of recurrence might show up there. He also sends me to periodic PET scans to look for more advanced signs of cancer that might not show up in the blood. Overall, it's anyone's guess whether cancer cells are still skulking about. We'll know when a tumor appears, just like the other times.
Meanwhile, I've come to use each day for doing things I love and taking the best care of my body and mind that I can. (After all, they are my oldest and dearest companions, as we say in Mindfulness Practice.) Unfortunately taking care includes juggling a host of meds. And I dole out social energy with great care -- balancing relationships with appointments, exercise, and household duties (as few as I can get by with without threat of divorce). I hoard a large share of my time for taking it easy. Fatigue and residual nerve pain from last year's wicked treatments are ever-present reminders that 1) the medical people are sometimes clueless and 2) I need to revel in the good times as they present themselves. I join the ranks of those who have dealt with difficult stuff on a daily basis far longer than I. I have a new understanding of how strong you are.
I sometimes feel as though I lead a double life. There's the pouty-angry me and the revels-in-small-pleasures me. Fortunately, the reveler is still in the lead.
Merry Christmas to all -- and especially those who continue to keep us on their Christmas-card mailing list year after year even though we don't reciprocate. Your greetings and life updates are very much appreciated here.
(Here's the last portrait completed, grandson Simon. My friend Susan is up next.)
Monday, December 3, 2012
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