(This photo, borrowed from Google, seemed appropriate in light of how often I frequent the drug counter at Walgreens.)
Very annoying – Intermittent throbbing headaches with marked sensation of facial tingling. It would seem to me these “spells” are obvious to others, though apparently they are not. Eyes feel gooey or foggy or like a gel’s been dropped into them.
Scariest – Speech slows and aphasia (word loss) worsens as concentration is off. In one instance, I needed to carefully think where my feet were and what walking involved; I knew I should not have attempted to drive my car. I wasn’t certain which side of the road I belonged on. Greg pointed out I was twenty miles an hour over the speed limit.
Most amazing – Feels like the top of my skull’s been sliced off (like a Halloween pumpkin) and my brain’s exposed to the air. A cool breeze wafts over my imaginary exposed brain.
Weirdest – Skin sensations of “rug burn” … or like I’ve skidded across the gym floor. Sometimes it’s a whole body skid, sometimes just up both shins, sometimes just an area on thighs, back or belly the size of my hand.
Druggy – All-over druggy feeling reminiscent of the three months of chemo experienced in 2007. Shaky, weak, sweaty palms and feet, butterfly stomach.
Minor – Heartburn/reflux. I do not usually experience this, but it is a common occurrence now after eating.
Slightly annoying – Dry mouth easily remedied with chewing gum, though I do not approve of chewing gum in public. I have now become that person I disapprove of.
Easiest to remedy – A quick swirl with a bacitracin-coated Q-tip does wonders to keep my nostrils comfortable. Without attention, the mucous membranes tend to dry and eventually bleed.
Ugliest – Vanity dictates swollen ankles and eyelids are both ugly and annoying. Ankles are stumpy, sure, but when eyelids ripple in folds over eyelashes, that’s unnecessary aging and cannot be tolerated.
Most predictable – Losing eyelashes and hair at an ever-increasing rate. Last time I went bald I purposely pulled my hair out one evening while reading. This time I’m being gentle. Every day with hair is another day with hair, though male-pattern baldness is increasingly difficult to cover up. Not having to shave one’s legs is a plus.
Moderately annoying – The still-seeping wound in the center of my torso, a circle roughly the size of a pencil in diameter. Various remedies have been tried for healing, but the recent addition of miraculous silicone bandages that seal in moisture, keep out the sting of salty sweat, and prevent the area from being stretched during movement, I’m seeing huge quality-of-life improvements in the open-sore department.
Somewhat concerning – Spikes of high blood pressure (in a person whose norm is low blood pressure). I suspect the blood-pressure spikes may be the cause of some of the above sensations. 'Am now armed with blood-pressure cuff for monitoring as instructed.
Soon I will have a follow-up CT scan for another look at the “indeterminate spot” on my rib to see whether chemo has caused any change.
Sleep is predictably controlled by juggling my three sleep aids throughout the week as steroids come and go.
Having said all that, I am now 60+ hours out from Monday’s treatment without a “spell.” So much for predictability, but I’m not complaining. Five chemo days down, thirteen to go.
Also, Oncology tells me none of my reported side effects match the norm for my chemo recipe. They are sending me to a neurologist next week Thursday.
Both temperatures and garden blossoms would indicate we, in Wisconsin, are having late September in July this year.
Thursday, July 14, 2011
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Wow is all I can say. I am blown away both by what you are going through as well as what an amazing writer you are! :) Your eloquent writing makes your side effects sound almost...beautiful (case in point: "A cool breeze wafts over my imaginary exposed brain.").
ReplyDeleteAs an aside, Barnes & Nobel is having a big summer clearance with tons of books for 1.99 and 2.99. I am stocking up and so should you--I promise I will update my goodreads account soon! ;) Take care. *Hugs*
Hugs from me too Mary. Vanessa says it all and you rock as a writer. Wishing you to bee well, or at least, scads better! Deb
ReplyDeleteMary,
ReplyDeleteMy mouth is still agape as I re-read your most personal journey with the side effects you are facing with chemo and try to imagine what it must be like to be in your shoes (slippers, bare feet, whatever it may be these days).
WOW-A!
Wishing you best at your Thursday appointment.
We still smile when we get the chance to hear your random bouts of laughter spreading through the yards. :)
Your Neighbors (and we would lend you a cup of sugar or egg if you ever needed)
Mary: Your update reminded me of when I was going through chemo. Escpecially the part about the top of your skull be open and the cold draft. EXACTLY. I could never put words to it. Not quite a brain freeze, but a cold waft. Hmmmmm, strange. I have to tell you that your side effects do not seem uncommon to me, numerous yes, uncommon, no. I remember most of them. I wonder sometimes if oncology understands what we go through. Hang in there. You are a tuff cookie. I'm going to come and hang out with you some day soon. Pam
ReplyDeleteChemo is some creepy stuff. I like how you compartmentalized and were so descriptive with words. It gave me goose pimples to imagine the bounty of side effects and symptoms experienced.
ReplyDeleteAphasia is the scary word I learned about last summer when my dad had head surgery. The walking and driving part-Oh mY. You are stunning! D