Sunday, January 22, 2012
"The hardest part about breaking out in shingles just as you think you're healing from severe radiation burns is that you cannot predict your level of pain from hour to hour." -Mary Murray, Jan-2012
"The hardest part about breaking out in shingles just as you think you're healing from severe radiation burns is that you cannot predict your level of pain from hour to hour." -Mary Murray, Jan-2012
My last blog entry, January 5, seems like months ago, not 17 days ago.
In retrospect, the first indication of shingles appeared January 8 -- a rash in the area of greatest vulnerability from radiation damage, my armpit.
The following day Greg and I saw my radiation-oncology doc and discussed issues outlined in my January 5 blog. (While I mentioned that day that I had a new rash in the armpit, we all glossed over it as I thought it may have come about as a result of trying a new -- more comfortable? NOT! -- bra the day before. I was told radiation pain might go on for several months and was awarded more, stronger pain meds. At last, Rush Limbaugh and I have found common ground.
The rash grew angrier and covered more area as days went on, traveling to the middle of my back. So now I had pain in front AND back. Getting comfortable in a chair or bed? -- out of the question.
It was a rough week, at the end of which Greg STRONGLY URGED me to see my dermatologist.
Shingles.
Shit.
Shingles!
Already armed with various levels of painkillers, dermatologist added a med to fight the shingles virus and Neurontin (which I stopped after just one tiny pill. Talk about a way to get whacky!).
Memories of the week following the shingles diagnosis are sketchy. Lots of notes around the house about when I took my last pain pills, which kind, how much, etc. Sometimes there was drug-induced bliss and an exaggerated sense of humor. Often there was too much fog to play "Words with Friends" or make a coherent grocery list. Most of the tme, I stayed safely out of harm's way ASLEEP.
I have now had my followup with the dermatologist. He says I can come out of quarantine in another week. Rash has gone through dramatic changes, appearance-wise. Pain can be anticipated to continue for some months.
While I'm ever so grateful the pain doesn't only come, it also goes, the coming and going is unpredictable -- keeping me from planning my day much less making any longer-term plans. What comes comes, what happens happens.
One minute I'm ready to tackle a project, the next minute I'm in bed waiting for pain pills to kick in. The need to drive a motor vehicle poses a challenge and considerable planning, to the best of my ability.
Thanks to all who haven't forgotten about me during unusual absences from Facebook, e-mail, The Y, and coffee shop meetings. May life become more manageable again one day and may the lessons I'm being taught serve to make me a better person in some small way going forward.
Kudos to Greg Koerber for helping me stay afloat as we tread water waiting for the tsunami to subside.
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Nice to have the gregor be your frudder in your tsunami...
ReplyDeleteHopefully and surely the worst is past!
-mit
I hope that things get better soon! Thinking about you!
ReplyDelete-Vanessa
Shingles. Wouldn't that be a great play for Words With Friends. As a sometimes blogger myself, Words With Friends seems a more appropriate time-waster than, say, television. Bottom line, my blog has more word game posts than thoughtful entries. Distracted by WWF and TV. I will always justify my TV time as long as I can tie it back to wordplay. Blame my love of Scrabble, WWF and TV trivia for me creating my blog and the anagrams I invent. Still, all these distractions keep me from blogging like you do... Oh, and feel better soon.
ReplyDeleteLeona
I have not forgotten about you. I think about you every day and pray for your recovery. Please don't disappoint me! We want to bring Owen over to visit with you when the time is right. Dale B
ReplyDeleteI don't think it's right that they give a name that rhymes with "jingles" and "dingles" to something that is so painful. Lousy shingles. I'm sorry. Thinking of you and sending amazingly fun and pain-free dreams that fill you with delight. xo
ReplyDelete